Saturday, March 17, 2018

 I've been through the fire and I've been through the rain but I'll be fine.

No truer words spoken,  and leave it to Rod Stewart to have a song that sums up my life these past 8 years so perfectly.  I haven't listened to it in a long time,  maybe because it became a bad juju song for me and I didn't realize it.  But I have been through hell and back again,  many times with this disease as we try to find the right meds and dosages to take to keep the evil monster at bay,  but I always seem to hit a set back with snow storms.  And all these nor easters have left me messed up again, but ill come out the other side and be ok,  I can already feel it starting to change for me,  I'd like to think the worst is over but who knows. Right now I look like a diseased hooker with all the sores but they seem to be healing quickly. 

I bet you're all wondering about G, cause I mean she is my little miracle after all.  She has morphea, which is a type of scleroderma. So much for hoping to keep her away from the RA family So far it's only on her neck and a tiny spot of her hair line.  We've been through months of steroid creams and antibiotics.  She sees her dermatologist next week for a follow-up. 

All the bad shit was supposed to happen to me,  not my baby.  But she's happy,  incredibly smart, caring,  thoughtful, beautiful and is a typical 8 year old who's turning 16 lol. God save me lol

Be well all